Thursday, June 26, 2008

Once More, With Feeling

UPDATE: She's out, she's well, everything went precisely as planned. Thanks for all the love, people.

Remember Isabel? Many of you have kindly written and asked after her, wondering how she's been doing since her big surgery, so here is the latest:

Four Months Old, Smiling

The latest is awfully cute. She is a four months old now, smiling and sometimes giggling an almost imperceptibly quiet little giggle. She's slowly gaining weight with the help of both G-tube feeds and bottles and, despite continued problems with keeping her milk down, she is (finally!) approaching ten pounds. She likes to lay on the floor, clutching rattles and inching around the blanket, and is even trying to flip herself over.

Isabel: 3 months old

She wears her helmet most of the time, which is a little uncomfortable as the hot Idaho summer unfolds. Here you can see her wee, pink seashell ear and damp tufts of fuzz.

Isabel's Ear

And as wonderful as these things are, there is a but. Her parents learned a month ago that the coronal sutures in her skull have once again fused. (This is, apparently, not an uncommon occurrence for children with Crouzon Syndrome.) And, once again, her growing brain has nowhere to go but up, and up is being compressed by a pink and purple butterfly helmet.

Isabel sleeping

So, first thing tomorrow morning, Isabel is once again having surgery. She has an excellent team of surgeons and they believe this surgery will be brief and simple when compared to the first. We all certainly hope so.

And, once again, I'm asking for your best hopes for a little girl you don't know, a little girl who has been through far more in her first four months of life than most of us can imagine. She'd really like to just be better already, we can tell.

Thank you, in advance, for your prayers, well wishes, hopes, finger crossings, and breath holding. You're a good egg.

50 comments:

The Cheap Chick said...

It's a weird feeling, crying over a baby you've never met - and probably never will.

But I am praying with all my heart and Catholic power that she will be okay.

All Adither said...

Oh, that poor little cutie. I hope the second surgery isn't too traumatic.

Veronica @ Toddled Dredge said...

I hope all goes well. I will pray for tonight.

Veronica @ Toddled Dredge said...

That was supposed to be "pray for her tonight."

Rima said...

Oh, she is just so adorable. I like her already, and I will most definitely keep her in my prayers tomorrow and in the days to come.

(By the way, I love your new banner and profile pic.)

Rima said...

On a totally different note, can you do a post about eye makeup? Because, even in black and white, I love how yours looks in your profile pic and I could REALLY use some pointers.

J. said...

What a beautiful little girl. Good luck to Isabel and to her parents.

kimmomofeight said...

I check in on her blog every other day or so. I feel so drawn to know how she (and the rest of her family is doing), despite the fact that I am miles away and a complete stranger.

Still pulling for her from my little corner in Canada.

mjgolch said...

oard,I hope that every thing goes smothly.

lori said...

i'm crying at work now, but I will definately be praying for the family and that beautiful little one.

hippyhappyhay said...

Precious girl. All my love to her, and her parents/aunties/grandparents/cousins etc.

Jenn @ Juggling Life said...

I will send positive thoughts from California.

You are an amazing photographer.

Stu said...

Thanks for the update. Praying all goes well.

-Stu

ophelia rising said...

Oh, ALL my good wishes and thoughts and prayers go to her, tonight and tomorrow. And to you, and your family. What a sweet girl.

princessofsomething said...

poor sweet baby. What a darling she is. She and her family are certainly in my prayers.

Lisa Milton said...

Of course. We are sending all we've got to muster.

She's a beaut.

iloveupstate.com said...

Good thoughts! Good thoughts!

She is a cutie pie.

I can't believe I just used the term "cutie pie" that so un-me, but it's true. I want to scoop her up and pop whip cream on her toes. Total cutie pie.

Angie said...

Oh, dear God - she is so sweet. I've not stopped praying for her - so no worries there! Thanks for the pictures - she is adorable.

Take care.

TEOM said...

I'm here, holding my breath and crossing my fingers...

planetnomad said...

I'm glad for the update--I've wondered about her. She's adorable! I'll pray the surgery goes well.

Danielle said...

She's precious!

My thoughts and prayers are with her. What a sweetheart!!

Meghan said...

I will be praying for her - sweet, precious baby girl....

bluemountainsmary said...

I'll be thinking of her , from far away ...

Amanda said...

Here via Mama Milton, sending my prayers!

MamaBird said...

Oh, *sweetie*! You had me at big eyelashes under pink butterfly helmet and then you had to go with the sleeping baby photo. All the best tomorrow, I will so be sending you and Isabel and family our heartfelt good wishes.

i am very mary said...

Sweetness like that will certainly blossom into a beautiful little lady! All my unending love to the princess, her parents, and the large group of you awaiting tomorrow.

Jenn said...

Oh the sweet little face! I hope all goes well for her !

MsPrufrock said...

I had to brief myself on the situation (thanks for the backlinks). She is so adorable!

I'll keep Isabel and her (extended)family in my thoughts.

Anonymous said...

Blessings and well wishes to your whole family, especially little Isabel

dkuroiwa said...

That baby is adorable. The way you capture children is definitely a blessing.
Sending prayers and good thoughts for Isabel and all that are around her!

happygeek said...

Praying.
She is cuteness defined.

family-of-five said...

oh, tears. get better, you brave little cutie.

The Boddeker Blog said...

I'm so glad to hear that sweet Isabel is out of surgery fine. I am sending good thoughts her way, your way, her parents way, all the way!!!

standing still said...

Good news! I am always astounded at the amazingness and resiliance of babies... I'll keep praying and sending my good thoughts!

Cheri @ Blog This Mom! said...

I'm so glad you posted this. Thoughts and prayers are sent.

stephanie (bad mom) said...

You with the amazing photos - Isabel is fabulously gorgeous and obviously strong. How could I not pray for such a being.

*blessings*

mdwest said...

I'm so glad to hear all went well. She (and her mama and her papa) will certainly have my thoughts and prayers during recovery.
she's a gem and a trooper!

dharmamama said...

What a sweet, sweet girl. Some friends and I are holding a healing circle later today, and Isabel will definitely be included.

bipolarlawyercook said...

So glad she is doing well.

Jackie Tx said...

rolling over already! my 5 1/2 old son is bearly doing this now! so happy she is doing better and I pray for her as if she were my own that the angles are watching over her and comforting her too.

Jozet at Halushki said...

Much love to Isabel.

She is gorgeous.

And you are a wonderful Auntie. Much love to everyone in your family.

wrekehavoc said...

coming out of lurk mode to just wish that baby and her family all the good luck and good health.

lapoflux said...

She's gorgeous. I am so glad all went well.

Sweet Pepita said...

Love and good thoughts to your family. She is beautiful and strong!

Which Box said...

Whew, glad it all went ok.

bensrib said...

Bless her little heart, she's precious! I'm reading this too late to pray for the surgery, but I've prayed for her swift recovery and to be better, already!

The Cheap Chick said...

Thank you for the update. It's a HUGE relief that she's doing better.

Stu said...

So glad she is doing well.

-Stu

Amy the Mom said...

I check up on her often, digging through your old posts to find the link because I'm apparently too lazy to actually bookmark her site.

Prayers going her way. I'll immediately cease bitching about my son's measly class 3 underbite.

Tootsie Farklepants said...

I feel awful that I'm late to read this. I hope beyond hope that all went well.

xoxo